Privacy Statement

Collection, use and sharing of personal information

When you contact us via our webform or ask to be added to our newsletter, we collect your name and email address. We will continue to use your email address to communicate with you. We will not share your information outside of the steering committee and other members of the workgroup who need your name and email in order to advance the program. Your information will not be shared outside of this group or for any other purpose without your permission.


Our website uses only cookies that are necessary to allow for ease of navigation or use of our website and, as such, are not associated with an individual.

How we protect personal information

We store the personal information we collect in a secure cloud environment and we have implemented appropriate security measures to protect your personal information from unauthorized access, use and disclosure.

We are committed to retaining personal information for only as long as is necessary to carry out the purpose for which it was collected.

Data rights

You can withdraw your consent to process your data at any time and you may have additional rights under local law to request access to, correction of or deletion of your personal information. To exercise a data right, please contact us by email.

You may also have the right to submit a complaint about our handling of your personal information to a Data Protection Authority. The name and contact details of the Data Protection Authorities in the European Union can be found here.

How to contact us

If you have questions about this Privacy Statement or about our handling of your personal information, you can contact us by email.

Changes to this privacy statement

If we update this Privacy Statement to reflect changes in our data governance practices the revised Privacy Statement will be posted here with an updated revision date. We encourage you to check back periodically for any changes or updates.